oh my god i had no idea these were a thing maybe i could bake again 😭😭😭
If you're ambulatory and struggle standing to cook, consider a "perching stool" for the kitchen. They're made to make cooking safer and easier for disabled people and there's a lot of different kinds. I wish I had known about these when I could still stand.
I hate how often some (typically abled) people will go “well, if you can’t [get a specific support], then what?” when it comes to disabilities. As if it’s a “gotcha” moment. And then act like you’re exaggerating when you answer that question honestly.
Disabled people often die from a lack of support. A lot of disability aids are not a luxury, but a basic need in order to live.
“Well what happens if—” people die. People hurt themselves. People hurt others. Disabled people don’t magically become abled if our needs aren’t met.
If a bedbound quadriplegic is caught in a housefire, and there’s nobody there to save them, they’ll probably die. They won’t magically become able-bodied out of sheer will.
If a nonspeaking/nonverbal autistic is denied access to alternative methods of communication, they’ll suffer in silence. They won’t spontaneously become capable of speech.
Disabled people are disabled all the time. Our disabilities don’t go away just because they’re inconvenient, or if we’re in danger.
being unattractive or physically different/disabled DOES NOT equal being morally bad/evil. there is an atrocious amount of ableism that occurs when someone doesn’t look “normal.” and i am so fucking sick of it.
in media it is (almost) always the villains who are different/disabled. and media is a massive part of how people form their world views.
i want to mention arcane for example, because people seem to be confused about what good representation is. people praise the hell out of that show, and for good reason it has great things about it, but people told me it had good disabled representation. so i watched it. and while parts of the disabled representation is good.. almost all physically different/disabled characters are portrayed as bad/evil/villains at some point in their story (or all of it.) and then by the end of the show most of them are dead.
abled people i need you to understand that is not good representation. please look out for these tropes it happens ALL the time.
good representation includes different/disabled characters who are heroes and morally “good” too.
if you make all your villains physically different and none of them are heroes i hate you. i am so sick of this.
physically disabled people who are also fat deserve mobility aids just as much as physically disabled people who are skinny.
we also deserve to have mobility aids that fit us, we shouldn’t have to settle for ones that don’t meet our needs. whether it’s having a high enough weight limit or being wide enough or being sturdy enough, we deserve that.
it doesn’t even matter whether a person is fat because of their disability/ies or if they’re disabled because they’re fat. that person still deserve good mobility aids that meet their needs.
[this is a post about fatness and physical disability, derail and i will steal your mail for three months and two days]
notalgia is so strange because what do u mean i long for things that remind me of the worst times of my life?
how do other chronically ill/disabled people answer the “what do you do for a living/are you at university/do you travel” type of questions when you cant do any of those at the moment 😭
i feel so pathetic and stupid being like.. ermm i do none..! i just.. yk.. try to keep myself alive
please please please allow yourself to try aids and adaptations. it’s not giving up but working with your mind body and being kind to yourself. it isn’t the tragedy that society mistakenly think it is. i’m proud of everyone who tries to find easier ways to exist 💜
i really want to reapproach the way i see success.
i think ive slowly been doing it for a few years now, but theres definitely more i can do.
i always think of it in the grand life goal kind of way.
but it doesnt need to be that..
and for me, i really wanna see if i can find things in my day-to-day life that are, a success.
did i put myself out of my comfort zone that day trying something new?
did i take a deep breath and calm my thoughts before getting frustrated at somebody?
did i show care to myself even when i felt unworthy of life?
did i do anything where if i was reading a book about me. would i be proud of the bee on that page?
because the answer is probably yes most days. but im not treating myself as if thats the case.
im so harsh to myself and i know this. i give grace to others where i would never for myself.
i just want to treat myself gently.
so cheers to small successes, the steps forward even when theres also steps backward..
and to not just treating others the way we want to be treated, but treating ourselves that way too.
absentmindedly doodling. i always have a nostalgic soft spot for the season 1 dynamics in winx club.
theres been 2 times in my life where i lost every friend i had for being sick its ruthless out there
I didn’t get a lot of love growing up. Things got worse the more queer I became.
I love the way our community does found-family. I spent most of my life finding lost queers and helping them. People come and people go but I was always welcoming people into my family. Always giving what I could give. Always sharing what I know. Always sharing connections.
When I got sick everyone left. Everyone left and I am a ghost.
Turns out when you give give give give and give…people are happy to take.
They don’t come back for you when you need it.
They leave when there’s nothing left to take.