i miss travelling without basically taking a mini pharmacy with me
so my school decided cause there were too many absences last year to note it on report cards which is whatever BUT they are gonna make a special note about it if you miss over 12 hours (even if it's excused, which is btw less time than i spent at hospitals the last month) so no matter what happens basically you have to go which is dumb
first of all i think doctors notes should completely excuse it because then it wasn't just staying at home for fun... also my school is the only one doing it in this region so only we will have disadventages when applying to university and yk how little 12 hours are? shit happens, like so many things can happen that you have no control over
a teacher offered to try to find a solution for me which i am thankfull for, but also this isn't only about me:
"oh but it probably won't affect you" i don't care it's still unfair
sometimes i forget you can actually just pass out from pain
my body just said "nope"
everything that could hurt... hurts...
i'd love some audiobook recommendations, thank you!
i'm mostly trying to not spend the whole day even if it means just sitting on the couch instead when i'm not feeling well. otherwise i always felt like i wouldn't get tired in bed at all.
any tips for what helps with insomnia?
i think i keep forgetting my chronic illness won't just stop once i graduate... like i'll actually have to live with it in the future and i have to work with it
i've always seen my graduation as the final goal before having the freedom to decide what i want my life to look like and now that is being taken from me
i always forget... i guess despite all i am still secretely waiting for a magical cure
"omg do you have a hangover?"
nope, just a chronic illness
rain is annoying because i don't have the strength to use both a cane and an umbrella...
love leaving the house thinking it's just a few drops of rain and then basically taking a literal shower
people that adapt to your chronic illness,
people that give you a ride and pick you up places without making you feel guilty
people that go to the ER with you
people that make sure to walk slowly so you can keep up while using a mobility aid
people that are willing to try different things to help you
people that are willing to learn and listen to you when speaking about your chronic illness
doctors will give me a test and go “well obviously we hope it’s not that” and I’m sitting there like bitch I have been through so many tests so many doctors so many specialist I have been in the ER more times than I can count I almost do hope it is that because then at least I know what’s fucking wrong with me instead of walking into the ER with my issues and being told it’s anxiety even though I know it’s not
having insomnia when having a chronic illness sucks!
my chronic illness flares up cause i don't get enough sleep, but i don't get enough sleep cause of my chronic illness