i think i keep forgetting my chronic illness won't just stop once i graduate... like i'll actually have to live with it in the future and i have to work with it
i've always seen my graduation as the final goal before having the freedom to decide what i want my life to look like and now that is being taken from me
i always forget... i guess despite all i am still secretely waiting for a magical cure
would love to make friends with some other chronically ill people!
some stuff about me:
i'm 19 and diagnosed with dysautonomia. i also got some chronic back pain and other stuff i'm trying to get checked out
feel free to message me if you aren't some creep :)
rain is annoying because i don't have the strength to use both a cane and an umbrella...
love leaving the house thinking it's just a few drops of rain and then basically taking a literal shower
loving people with chronic health conditions and there being nothing to do to help them SUCKS
i have chronic issues myself but when i break down it's mostly because the people i love are miserable
i am tired of seeing the people i care about suffer without being able to help
casually having a low symptom day the day of a doctors appointment
i love crocheting, but it messes with my wrists and makes them hurt even more, yet i refuse to give it up, because i don't want my illness taking another thing from me that i enjoy (especially since i can do it without leaving my bed)
wanted to go to london to see a festival with some friends and i realized i would need to get an accessible ticket to go...
it feels odd to actually depend on accessibility
collapsing on the floor in front of people that question my chronic illness just for them to freak out like i haven't told them this could happen at least 5 times
some guy invited me to go clubbing with him and his friends... i tell him i would go, even though it's not something i usually do, but i couldn't drink because of the medication i'm taking/health issues
he looked at me and just went "oh maybe some other time then"
and my question is why? WHY am i required to drink to hang out with people? and if that's just a rule then there won't be some other time, because i got a chronic illness and not just a cold
not being able to sleep due to pain sucks, because sleep is the one time i am not in pain
"just listen to your body"
hate to break it to you, but if i would do that i wouldn't even get out of bed