I Know I Shouldn'r Be But I Am Kinda Scared To Use My Cane Out In Public Alone... I Just Use It With

i think i keep forgetting my chronic illness won't just stop once i graduate... like i'll actually have to live with it in the future and i have to work with it

i've always seen my graduation as the final goal before having the freedom to decide what i want my life to look like and now that is being taken from me

i always forget... i guess despite all i am still secretely waiting for a magical cure

i would like to cancel my chronic illness prescribtion... i need to get things done

Dysautonomia is so wild.

You'll just be vibing and chilling, and your nervous system will go, "Hey, can't help but notice you ate a little more food than usual; we're gonna have to shut everything else down and direct all the blood in your body to your stomach," and suddenly you're lying on the floor with your legs elevated and a heart rate of 140 because your body doesn't body so good.

so my school decided cause there were too many absences last year to note it on report cards which is whatever BUT they are gonna make a special note about it if you miss over 12 hours (even if it's excused, which is btw less time than i spent at hospitals the last month) so no matter what happens basically you have to go which is dumb

first of all i think doctors notes should completely excuse it because then it wasn't just staying at home for fun... also my school is the only one doing it in this region so only we will have disadventages when applying to university and yk how little 12 hours are? shit happens, like so many things can happen that you have no control over

a teacher offered to try to find a solution for me which i am thankfull for, but also this isn't only about me:

"oh but it probably won't affect you" i don't care it's still unfair

someone told me that they would end themselves if they had even half of my health issues... idk what to do with that information...

having insomnia when having a chronic illness sucks!

my chronic illness flares up cause i don't get enough sleep, but i don't get enough sleep cause of my chronic illness

shout out to everyone who doesn't have a chronic illness!

How does it it feel to not be terrified of having to stand for longer than a couple minutes?

cluster headaches SUCK

i'm just existing and my head is all like *ouch* *ouch* *ouch*

i need to lay in bed for a week to make up for one day i overdid it

i'm in too much pain to sleep and i have to get up in a few hours cause it's a busy day

i am lucky if i get to close my eyes for a few minutes and it sucks