People Dont Understand The Boredom Of Being Disabled.

you guys made luigi mangione trend for days and I need to see the same energy for brianna boston. she is a 43 year old mother of three who ended a phone call with blue cross blue shield (after being denied a claim) “delay deny depose, you people are next” and is now being held under a 100,000$ bond and could face FIFTEEN years of prison if charged. she has no weapons, her record is clean, and yet she is being held behind bars. they are afraid of the public and are trying to subdue. do not let them!!!! be outraged that our freedom of speech is being threatened!!!!! deny defend depose! free brianna boston!

it hurts hearing other disabled people talk about medical mistreatment.

like i am partly grateful to not be alone of course, but i really wish it wasnt a common or even standard occurrence.

breaks my heart.

Do not really know what to say. A year ago we were making posts about how Gaza was being bombed through Christmas- how the oldest Christian community was being bombed- how the birth place of Jesus was being destroyed and his people murdered. A year later, it is going to be Christmas again soon, and the bombings have not stopped. But the news, and the attention seems to have died down considerably. It feels terrible and scary.

what abled ppl think is a massive problem for disabled folks: 13 year old on the internet faking something

what is actually a massive problem for disabled folks: "well you don't LOOK disabled, are you sure you're not faking? I'm not giving you accommodations until you PROVE you're not faking. Please give me, a stranger, your medical info and explain your condition to me in detail so I know you're not faking and only then will I respect or take you seriously"

I know I'm shouting into the void with this one but like. Genuinely so many low support needs people dont understand what it's like having even medium support needs. Like I am entirely dependent on other people for many of my needs. I can not see a doctor without someone else scheduling the appointment, taking me there and doing a large amount of the communication for me.

If my caretaker had not been accepting of me being trans and invested hundreds of hours into psych appointments and taking me to my endocrinologist and doing all the paperwork involved with my name change and literally taking a week off work to stay with me in the hospital for surgery etc i would have just like. Never transitioned. My ability to transition was entirely dependent on a singular person and that's what a lot of other parts of my life are like as well. and that's fucking terrifying and a great way to be neglected and abused in ways that are horribly hard to get away from.

I dont drive, I dont work, I struggle to leave the house at all, I dont fucking communicate with people majority of the time. The things that are hard for you? I probably can not do them to begin with. No one in my family lives even close to a comparable life to me. None of my irl friends do. I'm incredibly isolated.

And then I go online and see people rant about how easy MSN and HSN people have it because we just get everything we need and how because people can tell we are disabled everything is so easy because none of you even manage to listen to us talk about the neglect and abuse and trauma we face/d. I see people angry at their (more) disabled siblings for getting care they need to survive instead of mad at society for creating a system where its incredibly hard for families to take care of both a higher support needs child and another child.

And I see people who live completely independent lives who work and drive and make their own doctors appointments and grocery shop and travel by themselves call themselves MSN (I could go on a rant about how that's also often the fault of LSN influencers for not leaving a lot of room in their own community for legitimate struggle but that's for another day).

I just want my needs met. I want to be able to decide where I live. I want choice in my care. I want to be able to have community with those like me. I want others to realize I exist and leave the words i have to describe my existence alone. I want others to listen to what I have to say about what my life is like.

i hate greenwashing fucking hellll

quiet reblog

✨ Things I'm insecure about because of my disabilities ✨

Being unreliable

Having a messy room

Abdominal bloating

Not being 100% on top of my hygiene

Having to excuse myself to the washroom more often

Using my mobility aids

Random bruising

My chicken (weak) legs

Having to explain myself to strangers

Taking the accessible seating on the bus/train

Tripping over myself

My brain fog (I used to have a fantastic memory, I feel like I come off as stupid now)

Being super sweaty

Not being "good representation"

Leaving functions early

Sitting on the floor in public

And so much more. This is a reminder that you're not alone in feeling gross or undesirable, it's also okay to feel that way.

Sometimes you need to feel the feelings before you deal with them.

THIS its so important to understand that while yes absolutely we need support and funding for sick kids - these same kids will likely still be sick as young adults and need support then too.

I feel like people forget that pediatric illnesses generally last into adulthood like…childhood cancer survivors often have medical complications for the rest of their (adult) lives. My juvenile arthritis will be around when I’m 75. Crohn’s disease, cystic fibrosis, congenital heart defects - all of these things, when acquired in childhood, have lifelong complications. Childhood diseases aren’t just cute, happy kids smiling from hospital beds. Theyre pain and suffering and learning to live differently forever.