I Desperately Wanna Live On Linphea Its Stunninggg And Please If I Could Also Be The Princess Of It That

yea..

It’s hard not to feel alienated sometimes by your friends, even if unintentionally, as a physically disabled person.

“Oh, let’s go to this place!”

“How far away is it?”

“It’s only a three-minute walk.”

But you can’t do that three-minute walk. And it’s uncomfortable speaking up that you can’t do that three-minute walk. And maybe you’re well enough that day to push through it, but you pay for it afterwards. The worst part, your friends think they’re being accommodating because it’s such a short walk. However, a short walk to them isn’t a short walk for you. But eventually, you simply start saying no to hangouts because you don’t want to be a burden because you can’t engage in basic activities that are easy for everyone else.

Sometimes you do speak up, and you’ll ask something like, “Can we drive there?” and there’s always pushback. “Oh, it’d take longer to drive there than to walk” or “walking is good for you!” You regret mentioning anything at all; the discomfort and guilt linger.

Structural inaccessibility adds another layer to this problem. You’re forced to say no to countless hangouts that aren’t wheelchair-accessible. Even if you can walk, you might not be able to walk far enough to enjoy the planned outing. People start noticing you always say no, and before long, they stop inviting you at all. Maybe it’s better this way. It still feels lonely.

mate idfk but here we are this is now my side blog ig

me when i made this account upset that i couldnt get “zylahbee” as my account name only to discover IM THE ONE WHO HAS TAKEN IT 😭😭 i somehow have another tumblr i didnt know about i love memory problems 👍🏻👍🏻👍🏻👍🏻

I FEEL SO SILLYYYYY

look accessibility can and will be contradictory

I love a high toilet seat bc it means in don't have to put effort in with my legs, but people doing a chair transfer might hate it

an audio transcript at the end of a video might make it annoying for people using a screen reader

loud music for hoh people might make an event inaccessible for people with noise sensitivity

speaking longly and specifically for people who struggle with tone might make your message for people with cognitive disabilities

and the list goes on

but if you never start making your life and content accessible, then you're not helping anyone either. there's not a golden rule of accessibility but if you don't even put in an effort, that's when you become an asshole

the levels of brain fog i am experiencing i might as well be in fucking silent hill

My chronic pain doctor suggested I exercise more

I asked him “how?”

He looked confused. Said I should try a bit every day

I said “not when, how?” I asked what exercises I should do

He suggested half a dozen options that had all been explicitly banned by other doctors. I’m not allowed to run. I’m not allowed to bike. I’m not allowed to use my rowing machine or my punching bag.

I walk my dog whenever I have the energy and when it doesn’t hurt too much

What else can I do?

He told me I should exercise more

And then he changed the subject.

it hurts hearing other disabled people talk about medical mistreatment.

like i am partly grateful to not be alone of course, but i really wish it wasnt a common or even standard occurrence.

breaks my heart.

oh my god i had no idea these were a thing maybe i could bake again 😭😭😭

If you're ambulatory and struggle standing to cook, consider a "perching stool" for the kitchen. They're made to make cooking safer and easier for disabled people and there's a lot of different kinds. I wish I had known about these when I could still stand.

please please please allow yourself to try aids and adaptations. it’s not giving up but working with your mind body and being kind to yourself. it isn’t the tragedy that society mistakenly think it is. i’m proud of everyone who tries to find easier ways to exist 💜

likes to charge, reblogs to cast