exactly 😭😭 its always like “aw im so sorry i get it ive been through the same” and then ur like ah shit not another one.. :((
it hurts hearing other disabled people talk about medical mistreatment.
like i am partly grateful to not be alone of course, but i really wish it wasnt a common or even standard occurrence.
breaks my heart.
i find it interesting the overlap of c-ptsd symptoms with autistic traits.
i get asked all the time if im autistic. i even started questioning it myself just from how often this happened to me.
but while yes i have a lot of symptoms that are a part of many autistic peoples experiences, i wasnt always this way. i developed these symptoms throughout my childhood as i went through more and more trauma.
i remember when i wasnt sensitive to noise, light, etc. i remember when my social abilities were practically the same as my neurotypical peers. i remember when i never needed to carry stim toys everywhere i went. just to name a few.
anyways, i have so much in common with my autistic friends. while we arent the same, we get each other on a level that i havent found with many neurotypicals. ive also found that i often gravitate towards autistic people without meaning to.
i think its nice that we can find community where we didnt really expect it.
its devastating, seeing the life ive longed for happen to others while im stuck in bed in a flare up… again.. its so hard.
i unfollow a lot of people for this honestly, if i havent seen them in the past few years then i dont see the point in seeing a bunch of posts that make me feel bad, its sad.
Being chronically ill in your 20s is stupid you have to see your peers like “started a family🥰” “got married😍” “bought a house😇” “scored a promotion😋” meanwhile you’re fighting for your life to take a shower
chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier
this is amazing.
I hope this helps anyone who's trying to design their oc using a wheelchair, it's not a complete guide but I tried my best! deffo do more research if you're writing them as a character
I know I'm shouting into the void with this one but like. Genuinely so many low support needs people dont understand what it's like having even medium support needs. Like I am entirely dependent on other people for many of my needs. I can not see a doctor without someone else scheduling the appointment, taking me there and doing a large amount of the communication for me.
If my caretaker had not been accepting of me being trans and invested hundreds of hours into psych appointments and taking me to my endocrinologist and doing all the paperwork involved with my name change and literally taking a week off work to stay with me in the hospital for surgery etc i would have just like. Never transitioned. My ability to transition was entirely dependent on a singular person and that's what a lot of other parts of my life are like as well. and that's fucking terrifying and a great way to be neglected and abused in ways that are horribly hard to get away from.
I dont drive, I dont work, I struggle to leave the house at all, I dont fucking communicate with people majority of the time. The things that are hard for you? I probably can not do them to begin with. No one in my family lives even close to a comparable life to me. None of my irl friends do. I'm incredibly isolated.
And then I go online and see people rant about how easy MSN and HSN people have it because we just get everything we need and how because people can tell we are disabled everything is so easy because none of you even manage to listen to us talk about the neglect and abuse and trauma we face/d. I see people angry at their (more) disabled siblings for getting care they need to survive instead of mad at society for creating a system where its incredibly hard for families to take care of both a higher support needs child and another child.
And I see people who live completely independent lives who work and drive and make their own doctors appointments and grocery shop and travel by themselves call themselves MSN (I could go on a rant about how that's also often the fault of LSN influencers for not leaving a lot of room in their own community for legitimate struggle but that's for another day).
I just want my needs met. I want to be able to decide where I live. I want choice in my care. I want to be able to have community with those like me. I want others to realize I exist and leave the words i have to describe my existence alone. I want others to listen to what I have to say about what my life is like.
please please please allow yourself to try aids and adaptations. it’s not giving up but working with your mind body and being kind to yourself. it isn’t the tragedy that society mistakenly think it is. i’m proud of everyone who tries to find easier ways to exist 💜
Shout out to people who use adult diapers
Shout out to people who have chronic UTI
Shout out to people who have catheters
Shout out to people who have urostomys
Shout out to people who still wet the bed
Shout out to people with kidney scarring
Shout out to people who deal with kidney stones
Shout out to people with kidney cancer
Shout out to people with kidney failure
Shout out to people who I didn’t mention but still have kidney/urinary tract issues
I love you, I know it sucks, the judgement sucks, the symptoms suck. You’re not gross, it’s okay to talk about it. Your suffering isn’t taboo, never let anyone treat you like it is.
happy new year, i’m still disabled!!!!! crazy i know but here i am being chronically ill in 2025 like a loser
yes. yes. yes.
honestly i get so excited when i see someone switch over to the “i could never” response because so many people do the “lucky you, you get to be lazy” and that one just really hurts.
so when i see even a small step in the direction of understanding my life is not glamorous, even if its still a response i hate, i feel excited dkdhks
i really cannot understand how people see disabled life as this glamorised lazy life. i genuinely cannot wrap my head around this.
how could ANY of what i go through be seen that way i just dont get it.
People wouldn't do XYZ to a person with [disability aid] is such a bad take. I guarantee they do. They always do.