yes. yes. yes.
honestly i get so excited when i see someone switch over to the “i could never” response because so many people do the “lucky you, you get to be lazy” and that one just really hurts.
so when i see even a small step in the direction of understanding my life is not glamorous, even if its still a response i hate, i feel excited dkdhks
i really cannot understand how people see disabled life as this glamorised lazy life. i genuinely cannot wrap my head around this.
how could ANY of what i go through be seen that way i just dont get it.
never stop deal with this so this your periodic reminder that
⬇️
!! if you see someone write different online. unless they explicitly tell you something different. leave them alone. don’t comment on their write. don’t do anything unprompted to “help” without ask. it rude annoying we heard it million times promise. !!
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some people with language disorders. agrammatism. cognitive struggles. or write with symbol base AAC that not support grammar inflections.
yes we will sometimes write different than you use to.
yes it not “correct grammar,” you so observant (sarcasm).
no it not for fun, no it not choice, no it not writing quirk.
whatever you want say, we probably heard it million times. yes even if it friendly joke - n we appreciate you friendly. but please
great that it “actually help you read/understand better than full grammar.” some people may like you tell them that. but personally not want hear it too - my way write my disability, it about me n it not on purpose it out of my control. would rather you talk about how way break down concept (something can actually control n try really hard at) as easy understand.
“this just gave stroke/seizure/whatever ‘funny’ ‘edgy’ disability” joke. not that anyone make it would listen but. shut up. it not funny to me it not funny to stroke survivors or to seizure havers.
decide stop apologize for exist if it hard read. even if you have receptive language / comprehension / reading / cognitive / etc disability - it unfortunate but conflicting accessibility exist. (yes, do understand actually, because speak from experience.)
if you want know what am say please at least put in some effort to read it.
if after genuine try, still struggle, do what you do when you see tumblr post in “perfect grammar” you don’t understand - polite ask for explain or rephrase or summarize.
it still english, or whatever language person use. unless you actual look for it be turn different language, it still english, no you not need “translate.” (no don’t care that “translate” okay in writing quirk community because again. not writing quirk)
not “fix.”
and. understand sometimes we can’t rephrase in different way, even if that different way include still write different.
personally am allow other people answer “can you rephrase” questions without go through me first, for now, because of this. - but understand this is reluctant compromise. because:
understand sometimes we still sensitive to other people rewrite explain in perfect grammar. because have long history of people refuse put effort in read our stuff but instead always give more attention to people who write perfect, even if their writing not any less complicated than ours. because have long history of be charity case n get unsolicit “help” “translate” when we never ask.
because have long history of be forcibly spoken for n be misunderstood. because people who answer may (& many times do) get it wrong & we then have to spend more effort chase down n correct when we already struggle with communication, n that other version always spread faster than our correction.
so know other people who write different, don’t allow people rephrase at all unless go through them first. please also respect that even if inconvenient.
n on that note.
unless we give you explicit permission to you (like “you specifically can do it” or like above “can do it if someone ask,” or “anyone can do it all times”). don’t. don’t rewrite what we write into correct grammar, into perfect grammar.
don’t give random disabled person unsolicited help. it not friendly it not helpful it rude n annoying. not your charity case. who even are you. no one asked.
none. of. your. business.
not need your fix. get off moral high ground.
n like everything. there some jokes n comments that *some* people who write different may be okay with if they friend with that person make it - sometimes opposite of what this post say. if you not friend with that person then. maybe don’t.
people who write different not all same. sometimes okay or not okay with different things. but. this general see.
the first time you hear about [stuff am tell you in post] probably 456737th time we re-explain it. excuse us for be exhausted n done n our time be tired n angry n impatient.
this been a PSA.
i love video game character design
i got to the stoneville chapter and. oh my god. not even nonoy or, like, dada and giovanni are as hyper-detailed as this guy
YES YES YES. it is incredibly hard to understand our own bodies and feelings.
this is why we need doctors to really educate themselves by taking the time to listen to us and learn from us. a standard medical textbook isnt going to explain the medically complex to you, only working with medically complex people themselves can.
“consistency is key” doesn’t apply to many disabled people.
going to the doctor and having them tell me that, and that i need to stick to a schedule they have deemed appropriate is completely comedic.
what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.
what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.
how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.
do you not think i have tried to stick to a routine and schedule like all the healthy people around me??
all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.
im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs. prt. 2 here (now going to make multiple more posts on this topic lol)
i’ve decided on which story i want to tell first. very excitedddd
cries in a positive way
Practicing poses and body types and I drew flora. Enjoy!
I love how sleep advice is all like "make sure you only use your bed for sleep and sex" as if I've got anywhere else to fucking spend my day
comfort items are important. whatever that means for you, do it.
me carrying a stuffed animal around while being disabled is not "infantilizing disability"
I am an actually disabled person who carries a stuffed animal as comfort bc disability is hard
what's "infantilizing disability" is assuming that just bc I carry a stuffed animal I'm not capable of making decisions for myself. or that having a stuffed animal makes me a less serious, adult person than you are.
fellow LSN disabled people, this is coming from a place of much compassion and love. i hear you when you say you’re jealous of MSN/HSN people’s support. how you wish you could have such support. mental health is complicated and it’s hard to see through emotions and trauma.
but i really need you to understand that our higher support needs disabled friends aren’t inherently privileged for having said support. while it may be that if you had that same support your QOL would improve, they most likely need the support you’re jealous of to literally survive.
the point i really want to make here is there is a difference between support for QOL and support to SURVIVE. people die without these supports. that is not a privileged position to be in.
you’re allowed to be upset and angry that you don’t have the life you want and deserve, but please focus those feelings on society and governments. because they are the ones that created a world in which it is so hard for us to exist.
we need to be friends to each other, not throwing around misdirected anger and blame. please take time to listen to MSN/HSN disabled people and learn about their experiences, there are so many people out there begging to be heard.