me: "i'm so fatigued and my brain fog is pretty bad"
healthy person: "stop complaining, i'm tired too"
your "tired" is not the same as my fatigued! sleep won't cure me, this is not how it works!
my back pain is so bad today idk how i'm supposed to do things or even sleep!
i'm already doing physio therapy so idk what else to do about it at this point
"omg do you have a hangover?"
nope, just a chronic illness
doctors will give me a test and go “well obviously we hope it’s not that” and I’m sitting there like bitch I have been through so many tests so many doctors so many specialist I have been in the ER more times than I can count I almost do hope it is that because then at least I know what’s fucking wrong with me instead of walking into the ER with my issues and being told it’s anxiety even though I know it’s not
would love to make friends with some other chronically ill people!
some stuff about me:
i'm 19 and diagnosed with dysautonomia. i also got some chronic back pain and other stuff i'm trying to get checked out
feel free to message me if you aren't some creep :)
wishing my chronic illness would take the day off on busy days
i really respect people that say "oh i wouldn't wish this on anyone else" about their chronic illness because I WOULD
(unfortunately i might have become a little bitter, but i'm working on it)
sometimes i forget you can actually just pass out from pain
my body just said "nope"
people that adapt to your chronic illness,
people that give you a ride and pick you up places without making you feel guilty
people that go to the ER with you
people that make sure to walk slowly so you can keep up while using a mobility aid
people that are willing to try different things to help you
people that are willing to learn and listen to you when speaking about your chronic illness
casually having a low symptom day the day of a doctors appointment
how to ask your doctor for stronger pain meds without basically being called a drug addict