i need people to understand that when i say i can't do something it means that i can't do something, it is not up for discussion
naptime does become mandatory again when you're chronically ill
recovering from a simple cold really takes incredibly long when you have a chronic illness...
like please i wanna be able to do at least some things again
please if you're sick stay at home if possible or at least wear a mask!
... even if it's just a cold some people don't have the best immune system and i am tired of being sick on top of my chronic illness every other week
You are well within your right to be angry about the help you didn't get and should have gotten.
You are well within your right to be angry about having your needs neglected.
You are well within your right to be angry.
Dysautonomia is so wild.
You'll just be vibing and chilling, and your nervous system will go, "Hey, can't help but notice you ate a little more food than usual; we're gonna have to shut everything else down and direct all the blood in your body to your stomach," and suddenly you're lying on the floor with your legs elevated and a heart rate of 140 because your body doesn't body so good.
barely having symptoms for a few days made me think i was cured... turns out that isn't the case
me casually overdoing it on a low symptoms day and then wondering the next day why i feel bad
(will i ever learn? probably not)
asking for accomodations shouldn't be this emberassing and shouldn't be a big deal and i shouldn't feel this guilty for needing them
i'm in too much pain to sleep and i have to get up in a few hours cause it's a busy day
i am lucky if i get to close my eyes for a few minutes and it sucks
i would love a no symptoms day