Since This, The Pain Has Gotten Worse To The Point That I Have Between 5 And 10 Pain Free Days A Month

Since this, the pain has gotten worse to the point that I have between 5 and 10 pain free days a month and I finally saw a neurologist for it. And it's not migraines. It's atypical facial pain and I'm finally starting treatment🥳

Can't believe it took me 8 years to realise that the random pain I get in half of my face for a couple of days to a week every other month is a migraine...

I always thought it didn't matter bc it's not every day like my fibro pain

More Posts from Girlish-in-pain and Others

3 months ago

For my American mutuals🫶🏼

Dudes healthcare is so fake. My ADHD meds are $940 without insurance. But they gave me a website of "coupons" which straight up looks like a scam website, and I got it today for $60! Just a coupon from a random website and it was $900 cheaper. America, I am confusion!! America explain!!

7 years ago

pick your fighter

ukraine: edgy vampire sets whole stage on fire

spain: 3 month anniversary date singing to all of europe

solvenia: pink hair and her gal pals

lithuania: no please no not a ballad

austria: mmmmm heart eyes #bae

estonia: opera? really? okay rainbow dress, they did get the memo after all!

norway: not fairytale (2009)

portugal: they're gay and in love for sure

uk: british katy perry, got sabotaged, liked her more because of it

serbia: cult leader and sister wives feat. Albert Einstein on the pipe

germany: ballad but forgivable because its totes emosh

albania: adam lambert is that you? tattoos so good, china banned them

france: je suis bored

czech republic: backpack boy, sounds like talk dirty to me?

denmark: this viking ballad got me sailing straight to valhalla

australia: shE DOESNT EVEN GO HERE

finland: third time lucky saara?

bulgaria: washed up boyband???

moldova: no led staging? moldova don't need it

sweden: red lights I think? I skipped out for a toilet break lol

hungary: screaming into the void #mood

israel: the birdie song but new and improved (feat. body positivity)

netherlands: america? what are you doing here?

ireland: beautiful gay love story, don't hate us cause you ain't us China xox

cyprus: absolute banger, looks like Queen Bey

italy: absolute tune, powerful lyrics, anti-terrorist

3 years ago

From friends and family, to doctors, and strangers: disabled people have to face judgement, disbelief and hurtful comments. But guess what? There are so many more disabled people in the world than you realise, in fact many of us try to fake being well, because of the stigma and judgement surrounding disability.

Faking disability and illlness is rare. The 1 in 4 disabled people in the world are not rare. So next time you think about questioning someone's disability - don't. That's all.

2 years ago

I love spoon theory bc you can literally explain it exactly the same way it was originally explained, with actual spoons.

But also I feel like the failing phone battery is more accurate lately.

Like, you charge it all night, but it only slow charges. It never gets to full battery anymore.

When it says full battery, it doesn't mean the same as everyone else's, because it'll be gone twice as fast.

You have to limit your app usage bc of the battery drain, and even when you aren't doing anything the percentage is slowly going down.

Keeping it plugged in full time to charge means you can use your apps longer, but since it's slow charging it'll eventually reach 0 even when plugged in.

Keeping it plugged in full time also means the battery gets reliant on being constantly plugged in.

Actual percentages are a lie.

That shit will turn off with 5-10% battery still showing and there's nothing you can do about it.

7 years ago

Host: Were you expecting this?

Austria: No

Graham: No one was

3 years ago

if you ever feel like you're not "smart enough" for STEM or didn't do that great in school, i just wanna let you know that i failed algebra 2 THREE TIMES and dropped my high school physics class the FIRST WEEK...

and NASA chose me to student research with them.

so what i'm trying to say is that STEM is for EVERYONE. if school wasn't the easiest for you and you're not the strongest in math, don't let that stop you from pursuing STEM. working hard for goals makes you a great scientist.

screw that stereotype that all STEM majors are geniuses who were building robots and knew how to work a microscope at 3 years old.

STEM IS FOR EVERYONE! BECOME A FREAKING SCIENTIST! YOU CAN DO IT!

9 months ago

@ august please be a little gentle with me I’m so tired

3 years ago

Lockdown gave abled people the opportunity to experience some of the things disabled people have been experiencing their whole lives. This resulted in a lot of contradictory statements...

Disabled people were often scolded for spending so much time on social media / on our phones, yet when lockdown came, everyone realised the value of technology to keep in touch,

Disabled people were told they were lucky that they could spend so much time in bed, yet when lockdown came, mental health illness cases rose because people had to do just that.

Disabled people were laughed at for suggesting socialisation virtually with friends and family, yet when lockdown came, group calls and virtual family quiz nights held relationships together.

Disabled people were rejected when asking for the flexibility and accomodations to work from home, yet when lockdown came, these accomodations were easily made.

Disabled people asked for virtual doctors appointments and were told it wasn't possible, yet when lockdown came, it was the only option.

Disabled people were crammed into crowded places causing accessibility issues, yet when lockdown came, social distancing improved access.

Disabled people requested more online shopping and deliveries for essentials, yet when lockdown came, this was seen as a necessity.

Disabled people who wore masks before Covid were mocked, yet when lockdown came, wearing a mask was enforced.

Disabled people were met with jealousy when they stated they were unemployed, yet when lockdown came, many realised the true struggle of not having anything to occupy their time.

The hypocrisy of the abled people who would mock, deny and minimise the disabled experience who were then forced to live in a similar way needs attention. I hope that there is more compassion now. I hope that knowing the changes and accomodations disabled needed are possible results in more accomodations being made. I hope that companies choose to continue to support those with disabilities, even if that was never their intention. I hope that something good could come out of this devastation.

Comment below any more Covid contradictions you can think of!

ID: green background with cream text reads "covid contradictions" brown text reads "disabled people often asked for requirements that were rejected, yet during the pandemic, these became essential." Below is an image of a white woman wearing a yellow coat and brown mask.

Lockdown Gave Abled People The Opportunity To Experience Some Of The Things Disabled People Have Been
3 years ago

Don’t ever let anyone tell you it’s not okay to rest. Don’t let anyone tell you to just push through your pain because “you’ll be in a ton of pain anyway, right?” You deserve rest. Your body may be used to constant, unbearable pain, but when you start doing extra things your body may need a second to adjust. Yes, you’ll be in pain anyways, but don’t let someone override your personal experiences because they want to get somewhere faster. It doesn’t matter if you did jumping jacks yesterday, today you need a rest and dammit you deserve it. 

11 months ago

This is so important! I genuinely don't know if I can ever truly forgive my parents

dear parents, if your child has "seemed fine this entire time" but is now seeking out diagnoses, mobility aids, medical help, more doctors, and is sharing their pain more. do not fucking shut them down? even if it ends up being nothing, showing them that support through all of that will seriously help them. if it ends up being something and you're a bitch to them, the joke will be on you and that strain on your relationship will never go away because. you didn't listen.

listen to kids. we tell you what we need, it's not that hard.

  • howtobeapersonwithfibro
    howtobeapersonwithfibro liked this · 1 year ago
  • girlish-in-pain
    girlish-in-pain reblogged this · 2 years ago
  • crazycatme0w
    crazycatme0w liked this · 2 years ago
  • girlish-in-pain
    girlish-in-pain reblogged this · 2 years ago

24, they/them, nonbinary lesbian, disabled. Studying medicine, working on my internalised ableism, prioritising finding out what I like to do. I write, ish, or try to at least and that's something

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