Emptyspaxes - Bisho

happy disability pride month to those with conditions no one talks about, online or in general:

multiple sclerosis (me lol)

marfans

cerebral palsy

bells palsy

hidradenitis suppurativa

cauda equina syndrome

mixed connective tissue disorder

hyperadrenergic pots

non hypermobile eds types

stickler syndrome

mitochondrial disease

cystic fibrosis

sickle cell disease

myasthenia gravis

post-cholecystectomy syndrome

SWAN (syndromes without a name)

...just to name a few. i see you and you deserve awareness and understanding.

this list is non exhaustive, rb with other conditions you want to see represented!!

[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]

I want to be a writer; to translate my pain into flowery words. I want to be a writer—a good one, able to bloom petals in her wounds.

one thing about orpheus and eurydice is you guys are all like “i’m different i wouldnt turn to look at her” because you are all familiar with the story of orpheus and eurydice. but orpheus wasnt familiar with the story because he was in it lol.

p e r r y hkkgfdshk

Me: I don't know which of these things is my favorite.

Also me: You can call both of them your favorite.

Me: No, whichever is my favorite defines me. And A has always been my favorite. B is more of a recent favorite.

Also me: ... why can't both be your favorite?

Me: BECAUSE MY FAVORITE DEFINES ME.

My headaches have lasted since November 29th and it’s currently January 26th😞. It feels as if it has never stopped once and I honestly don’t remember what it’s like to not be in pain because of my head. I’ve had blood work and a ct scan done and everything comes back fine. Sometimes I feel like the doctors might think I’m faking my pain, but honestly why would someone do that for so long. I feel like my life is crumbling apart around me and no one in my family or friend group understands the pain I’m going through. Everyone tells me to get better soon but it hasn’t ever felt better and I’m getting annoyed at that sometimes. I know people just care and want to put in some motivation or what not but it just reminds me that I feel like I’ll never be the same again. I’m just praying for a diagnosis and to finally understand how to live my life again... but if anyone ever needs anyone to talk to about chronic pain or anything I’m always here for everyone. It’s hard and sometimes you just want a shoulder to cry on and I’ll be that shoulder if you ever need anyone 🥰💕

I like how the diagnosis thing for chronic migraines is like “15 headache days a month, each lasting more than 4 hours” like.

I don’t even have separate headaches it just. Doesn’t stop. It’s unending. Constant headache.

I’m up and active today? Doesn’t matter I’ve still got a headache. I’m talking and laughing and participating in my life? Still got a headache. It doesn’t stop. Sometimes it’s not as bad but it’s always there.

Lots of people (my mom included) don’t seem to understand that it literally never ends.

I don’t remember the last time I wasn’t in pain.

Genuinely.

I can’t remember.

• Fidgeting and stuttering do NOT always indicate that someone is nervous.

• Avoiding eye contact does NOT always mean someone is lying.

• Having a hard time focusing does NOT always mean someone is lazy.

• Carrying around a stuffed animal or blanket does NOT make someone childish.

• Poor motor skills is NOT a direct indication of intelligence.

Not everyone fits into your box. Deal with it.

I am once again begging several companies and important services (hospitals, GPs, etc.) to allow forms of contact other than verbally calling. Even with special numbers for that kind of thing, oftentimes the people running these services will still call back ignoring issues such as deafness or mutism, and then act as though you were in the wrong for lack of response - even if informing them of your condition beforehand.

I was fully mute for a few years, and the amount of times medical professionals ignored this and tried to call me for verbal discussions, or didn't provide another method of contact, was abysmal. They even demanded verbal calling by phone to be let into the building. So many services need to do better about this, and so do several companies. Not everyone can talk (even if they can hear), and not everyone can hear (even if they can talk). I am begging these services to do better.