My headaches have lasted since November 29th and it’s currently January 26th😞. It feels as if it has never stopped once and I honestly don’t remember what it’s like to not be in pain because of my head. I’ve had blood work and a ct scan done and everything comes back fine. Sometimes I feel like the doctors might think I’m faking my pain, but honestly why would someone do that for so long. I feel like my life is crumbling apart around me and no one in my family or friend group understands the pain I’m going through. Everyone tells me to get better soon but it hasn’t ever felt better and I’m getting annoyed at that sometimes. I know people just care and want to put in some motivation or what not but it just reminds me that I feel like I’ll never be the same again. I’m just praying for a diagnosis and to finally understand how to live my life again... but if anyone ever needs anyone to talk to about chronic pain or anything I’m always here for everyone. It’s hard and sometimes you just want a shoulder to cry on and I’ll be that shoulder if you ever need anyone 🥰💕
I like how the diagnosis thing for chronic migraines is like “15 headache days a month, each lasting more than 4 hours” like.
I don’t even have separate headaches it just. Doesn’t stop. It’s unending. Constant headache.
I’m up and active today? Doesn’t matter I’ve still got a headache. I’m talking and laughing and participating in my life? Still got a headache. It doesn’t stop. Sometimes it’s not as bad but it’s always there.
Lots of people (my mom included) don’t seem to understand that it literally never ends.
I don’t remember the last time I wasn’t in pain.
Genuinely.
I can’t remember.
(TW FOR ABLEISM, MELTDOWNS, ETC.)
Supporting disabled people is more than just supporting us when you think its cute, easy, or beneficial for you.
If your support ends when you see an adult in public with a diaper bulge, you aren't supporting disabled people.
If your support ends when you see someone drooling, you aren't supporting disabled people.
If your support ends when someone has a violent meltdown in public, you aren't supporting disabled people.
If your support ends when someone needs help being fed, you aren't supporting disabled people.
Etc. Etc. Etc.
I know that you dont think its cute or aesthetically pleasing to try and calm me down and be understanding of me when I throw my communication device across the room and slam my head into the ground because someone laughed too loudly, I know that you think its embarrassing. I know you dont think it's all "uwu cute tism" when I can't shower for a week straight and spend the whole day crying, yelling, and biting myself, but if that makes you angry at me, you arent supporting disabled people.
What is your limit to supporting disabled people? What is your limit to being okay with the fact that I am NOT like your nondisabled friends?
Where does the support end and the disgust start? How long until we are "too disabled" for you?
/not at anyone specific
I will irrationally hate anyone and anything that makes noise.
I don’t make the rules, I just gotta hate.
chest over knees gotta be the best position to stop the cramps
A lot of pop psychology gets thrown around and since I already have a headache, here's preventing you lot from making it worse.
Love-bombing: A manipulation tactic of increasing affection and grand gestures before or after doing something abusive, specifically to weasel one's way out of consequences.
What it is not: A streak of affection and generosity towards friends/loved ones.
Trauma-bonding: Knowingly traumatizing someone to take advantage of their vulnerable state, to then act like the "hero" or the one who cheers them up.
What it is not: Bonding over similar traumas.
Gaslighting: *Knowingly* convincing someone they cannot trust their own perception of a situation in pursuit of one's own narrative.
What it is not: Misaligned perception of events.
Narcissist: Someone afflicted with Narcissistic Personality Disorder, a traumagenic cluster B disorder, that struggles with self-obsession, paranoia, craving validity from the public, delusions of grandeur, and social disconnection.
It is not: Your rubbish ex that cheated on you.
Thank you for coming to my TED Talk.
-Xanthe
For anyone who has a disability or is in a situation that makes eating more difficult, I highly recommend this product:
I have extreme difficulty cooking, touching things, and using plates/cutlery due to my OCD and phobia. I have to rely heavily on premade food like ready-to-eat products made at my grocery store, frozen dinners, etc. This product I recently discovered has been an amazing help.
There’s only four of these breakfast sandwiches in the container, but they’re a pretty good size and very filling. I can eat one of these sandwiches and be good for hours. The only thing you need to make them is a microwave. They cook for only a minute and thirty seconds, which is super fast!
They require no preparation other than slightly opening the end of the package. You actually cook the sandwich right in the wrapper it’s stored in. This means that YOU DO NOT NEED A PLATE OR CUTLERY! You can use the wrapper you cooked it in to hold the sandwich as you eat it! So it is easy and quick to make, requires no preparation, it doesn’t make a mess, there’s no dishes to clean, you barely have to touch anything, and it tastes seriously good!
There are two versions of this product that both use different ingredients, but to me they tasted the same. The only real difference to me was that this sandwich uses turkey sausage and the other sandwich uses chicken sausage. This brand also makes some other similar breakfast items that are also very easy, but they require a bit more effort. The frittatas have to be put on a plate, and the breakfast burrito needs to be wrapped in a paper towel. I store paper plates in my fridge as an accommodation to help me still occasionally use plates, so I sometimes buy the frittatas. The breakfast burrito tastes so good and is a little easier for me to prepare with the paper towels than the frittatas that require a plate. But the breakfast sandwiches are probably the star of the show.
I know these sandwiches can’t fill someone’s entire dietary needs and that they won’t be useful for every disability that makes eating more difficult, especially disabilities like sensory disorders since they’re so individual, but I hope this recommendation can still help someone. If you have some days where cooking, touching things, standing for a long time, etc. is too hard, then this breakfast sandwich might be useful for an easy, filling, and tasty meal. The main obstacle of this product is that the price is about $6. Buy it on sale if you can. Since I tend to eat this as an entire dinner/snack, it’s not a terrible price since it averages out to $1.50 per meal. I’ve also accepted that food is just something I personally have to save more of my money for so I can spend more money on food that I can actually eat. Food that my disorders will allow me to eat is what I splurge on.
I hope this suggestion might help someone!
one thing about orpheus and eurydice is you guys are all like “i’m different i wouldnt turn to look at her” because you are all familiar with the story of orpheus and eurydice. but orpheus wasnt familiar with the story because he was in it lol.
I go by Bisho. I'm chronically ill, Autistic, and Physically Disabled. I love Horror Games and Kirby so much. I suck at social interactions online and in person.
186 posts