Early Diagnosed Autistic Peeps And Loss Of Autonomy

Early Diagnosed Autistic peeps and Loss of Autonomy

I honestly get depressed reading my reports when I got diagnosed with autism when I was 5. Development delay, underachiever in language skills, reasoning skills, fine motor impairment, lack of speech fluency and lack of self esteem (no really I was terribly anxious).

I had interventions to improve my skills I can’t deny that. but at the cost of pathologizing me and making my mom dreadful of my prognosis. My childhood was me being aware of my pathological nature and that is traumatizing enough.

Bc I have this constant need to prove I’m able enough and I’m not too disabled that is costing too much of my mental health. I’m concerned about many today early diagnosed autistic kids. They come from a age where there is a lot of misinformation that their parents follow either to “treat their symptoms” or just to reinforce their ableist bias.

Besides that early diagnosed kids tend to have way less autonomy than their NT peers. We lose our position to speak so that our parents and institutions can speak over us in their own limited lenses. That is traumatizing. That is why you don’t hear a lot of early diagnosed kids’ perspectives. Not because they tend to be the ones with more limitations to speak as people want us to believe and there is AAC for a reason. Not just because it’s more difficult to have a ealy diagnosis. it’s ableism.

A chronic loss of autonomy and infantilization. Always being spoke over because they just keep assume that you can’t. You can’t speak for yourself. Well here is a thing. WE CAN SPEAK FOR OURSELVES.

I can. I always could given the proper accommodations. I knew what I needed to say. But after spending too much time unable to speak for myself took me a toll and now I become angry when I feel like people know better about my needs than me. Therefore, I’m perpetually mad.

More Posts from Emptyspaxes and Others

1 year ago

cool thing a lot of people don’t know: discrimination against Deaf people isn’t ableism. it’s called audism. most Deaf people don’t see their deafness as a disability, but rather as an important part of their identity so calling it ableism could be incorrect or even seen as offensive

2 years ago

Nothing better than a good old post midnight meltdown because you're too afraid that you're not going to get enough sleep tomorrow cuz someone's forcing you to wake up early for physical activity and today's one of two days in a week that you actually can get solid sleep and even if you sleep for a decent amount of time (the bare minimum) you'll still feel ridiculously tired because your sleep quality has been shit the entire week etc. etc. etc.

2 months ago

Things I wish my body would do:

1. Knock it the fuck off. 2. See #1

10 months ago

I want to be a writer; to translate my pain into flowery words. I want to be a writer—a good one, able to bloom petals in her wounds.

4 years ago

My headaches have lasted since November 29th and it’s currently January 26th😞. It feels as if it has never stopped once and I honestly don’t remember what it’s like to not be in pain because of my head. I’ve had blood work and a ct scan done and everything comes back fine. Sometimes I feel like the doctors might think I’m faking my pain, but honestly why would someone do that for so long. I feel like my life is crumbling apart around me and no one in my family or friend group understands the pain I’m going through. Everyone tells me to get better soon but it hasn’t ever felt better and I’m getting annoyed at that sometimes. I know people just care and want to put in some motivation or what not but it just reminds me that I feel like I’ll never be the same again. I’m just praying for a diagnosis and to finally understand how to live my life again... but if anyone ever needs anyone to talk to about chronic pain or anything I’m always here for everyone. It’s hard and sometimes you just want a shoulder to cry on and I’ll be that shoulder if you ever need anyone 🥰💕

I like how the diagnosis thing for chronic migraines is like “15 headache days a month, each lasting more than 4 hours” like.

I don’t even have separate headaches it just. Doesn’t stop. It’s unending. Constant headache.

I’m up and active today? Doesn’t matter I’ve still got a headache. I’m talking and laughing and participating in my life? Still got a headache. It doesn’t stop. Sometimes it’s not as bad but it’s always there.

Lots of people (my mom included) don’t seem to understand that it literally never ends.

I don’t remember the last time I wasn’t in pain.

Genuinely.

I can’t remember.

1 year ago

Like, I really need people who are against self diagnosis, the majority of whom had the privilege of being diagnosed in childhood or adolescence, to understand how racist, classist, and ableist this viewpoint is.

So many people of color go undiagnosed. Their adhd/autism is chalked up to behavioral problems and no one bothers to look into it further.

So many poor people don’t have the money to be able to afford getting a formal evaluation. That shit is expensive.

So many people get misdiagnosed. Afab adults in particular are more likely to get diagnosed with BPD when they actually have adhd or autism. People with a trauma history have their symptoms chalked up to trauma and all adhd/autism specific symptoms are ignored.

If you were diagnosed as a child or teen you have absolutely no right to dismiss people (especially adults, afab people, and people of color) and act like self diagnosis is harmful. Most people who self-dx do so after extensive research and they know themselves better than you. Self-dx doesn’t take anything away from people with a formal diagnosis; it helps the individual find an understanding community and coping skills that make their lives easier. If you’re bothered by that, that says a lot about your character.

1 year ago

Oh! Aiden now see Aiden old rb is poof and now Aiden need make define.

Ok so

Level 1: low support need, can do most/all basic thing by self

Level 2: medium support need, can do some thing by self but maybe need help with basic thing or have hard basic thing

Level 3: high support need, not able do most/all basic thing by self or have many many hard basic thing

Person able be between level!

1 year ago

When you're nervous to use aac even though you need it because you don't want to "annoy " anyone or make things "harder" for them

11 months ago
To Dream Of Souls In Flowers, To Dream Of Gentle Smiles.
To Dream Of Souls In Flowers, To Dream Of Gentle Smiles.
To Dream Of Souls In Flowers, To Dream Of Gentle Smiles.
To Dream Of Souls In Flowers, To Dream Of Gentle Smiles.
To Dream Of Souls In Flowers, To Dream Of Gentle Smiles.
To Dream Of Souls In Flowers, To Dream Of Gentle Smiles.

To dream of souls in flowers, to dream of gentle smiles.

- Juan Ramón Jiménez

6 years ago

Instagram: @artwoonz

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emptyspaxes - Bisho
Bisho

I go by Bisho. I'm chronically ill, Autistic, and Physically Disabled. I love Horror Games and Kirby so much. I suck at social interactions online and in person.

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