i get people telling me im a nihilist sometimes but im really not. i just dont shy away from talking about the “negative” parts of life because i think its an important step towards change.
i dont think we are doomed, nor do i think nothing matters. im angry. im upset. and i want change. theres a difference.
i think its dangerous to loop all angry people into nihilism.
oh wow, i love that honestly. it put into words exactly how ive felt about my acceptance of being disabled.
"Acceptance isn’t defeat: It’s a declaration of self-respect under irrefutable circumstances. This is where you are and you’re going to make the best out of every moment of it."
Ilana Jacqueline "Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane and Live One Step Ahead of Your Symptoms"
look accessibility can and will be contradictory
I love a high toilet seat bc it means in don't have to put effort in with my legs, but people doing a chair transfer might hate it
an audio transcript at the end of a video might make it annoying for people using a screen reader
loud music for hoh people might make an event inaccessible for people with noise sensitivity
speaking longly and specifically for people who struggle with tone might make your message for people with cognitive disabilities
and the list goes on
but if you never start making your life and content accessible, then you're not helping anyone either. there's not a golden rule of accessibility but if you don't even put in an effort, that's when you become an asshole
yea..
It’s hard not to feel alienated sometimes by your friends, even if unintentionally, as a physically disabled person.
“Oh, let’s go to this place!”
“How far away is it?”
“It’s only a three-minute walk.”
But you can’t do that three-minute walk. And it’s uncomfortable speaking up that you can’t do that three-minute walk. And maybe you’re well enough that day to push through it, but you pay for it afterwards. The worst part, your friends think they’re being accommodating because it’s such a short walk. However, a short walk to them isn’t a short walk for you. But eventually, you simply start saying no to hangouts because you don’t want to be a burden because you can’t engage in basic activities that are easy for everyone else.
Sometimes you do speak up, and you’ll ask something like, “Can we drive there?” and there’s always pushback. “Oh, it’d take longer to drive there than to walk” or “walking is good for you!” You regret mentioning anything at all; the discomfort and guilt linger.
Structural inaccessibility adds another layer to this problem. You’re forced to say no to countless hangouts that aren’t wheelchair-accessible. Even if you can walk, you might not be able to walk far enough to enjoy the planned outing. People start noticing you always say no, and before long, they stop inviting you at all. Maybe it’s better this way. It still feels lonely.
anyone else use drafts like a todo list
i have so many drafts that just have like one or two words where i was like omg gotta post about this and then moved on and i dont really know what i was trying to say !!
pls communicate with urself better ty bee
getting the cancer response is particularly funny for me.
i had cancer. thats what made me chronically ill.
telling people that seems to blow their minds.
theyre like no but cancer is the worst and you dont have that now but you had it before so youve had both cancer and being chronically ill but like cancer is worse and-
they dont know what to do with that. they tried to make a smart comment and it failed miserably. its funny to me. (i have to laugh or ill cry)
Telling a chronically ill person "at least its not cancer"
Or someone who's disabled due to a tragic accident "it could've been worse it could've disabled you more"
Or anything along the lines of "you could be dead or more disabled be greatful" I hope you rot in a hole where everyone you ever loved forgets you ever existed and you have to sit with that like in coco where you disappear when you're forgotten because that is so insanely rude and even more disgusting and if you don't know how to talk about disabilities without trying to "look on the bright side" or try and cheer people up about it maybe you shouldn't talk about them because some disabilities just are and they're always going to be and there's nothing anyone can do about it
And if someone is dying from their condition but its taking years instead of being fast like tv and stuff portrays it pls for the love of God don't tell them they "aren't dying fast enough" or "weren't you dying last year"
This post is specifically in reference to all the horrible comments able bodied people leave on disabled ppls social media's where the person shares their experiences
you know how people talk about seeing in black and white and when things are more complicated or nuanced then they say its grey? yeah i kinda hate that. life is so much more than greyscale.
i like to think about life in rainbow thank you very much.
i dont believe that the scale of right and wrong, good and bad, is linear. people are SO complicated and the scope of what is possible is enormous.
when we talk about complex topics like politics, trauma, ethics, diversity and disability there are countless factors to consider. youre telling me that makes it grey??? 😭 nonono that makes it a unique blend of all the colours of the rainbow depending on the persons entire lifes worth of experiences.
this dont mean you can excuse your actions by saying its complicated, it can be complicated and still be wrong this is just about readjusting grey to colours
anyways when someone does something you disagree with, instead of trying to think in shades of grey, consider the endless amounts of possibilities there are to create a unique painting of colours representing this persons experiences.
think in colour peeps 🌈
nailed it
i also feel like stella helps tecna to let go sometimes, to help her live more freely and step out of her comfort zone. tenca would totally not break so many rules at alfea if not for her friends.
also, keep in mind these are my impressions based on watching only first season!! i will yap more about their friendships as i continue watching the show! ✨