Last Birthday Post!

Just sending a message to say ‘hi’! And to say I totally get your frustration over “normal” lab results. All my labs have been normal and yet here I am, symptomatic! 🫠

Hello! Just because your lab results came back normal does NOT mean you are invalid and that there is nothing causing them.

I learned after going to the hospital yesterday (forgot I did that yesterday what fuck…) that I most definitely have POTS. I have slightly low sodium and heart palpitations. I have all the symptoms of it. When I treat my body like I have POTS it feels better

What I do to help:

The biggest fucking container of water CHUG IT

Salt, and I mean a lot

Compression socks are a gift from above

AND GET A TILT TEST DONE (I hope to do mine soon)

Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!

WORK IN PROGRESS

Represents my chest pain and rapid heart rate

title-: Heart Palpitations

I'm gonna faint from anxiety, but I DID IT!!! Made My First YouTube Video

From chronically offline to chronically ill

TO ALL FELLOW CHRONICALLY ILL AND DISABLED PEOPLE

What would you like to see in artwork to help represent you? People with mobility aids? People that look like you? Give many any of your thoughts and ideas in the comments, my inbox, or my DMS

Me: Before getting really sick I could easily go to bed around 9:30. Can I still do that? (´ . .̫ . `)

Body: Oh god no! You're staying up till 1 am without choice.

Me: Well at least I can sleep in-

Body: WAKE THE FUCK UP ITS 5 AM AND WE JUST HAD A NIGHTMARE

┻━┻ ︵ヽ(`Д´)ﾉ︵ ┻━┻

When you're mean to me, this is who you're hurting ｡･ﾟ･(ﾉД`)･ﾟ･｡

Love this response! I haven't been able to shower cause of my back and leg pain, but I'm so so glad you were able to :) I'm so grateful for my partner too! We love understanding and patient relationships. We've been together 1 year now and I can't wait for year 9!

I'm trying to create amore positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically and they can really put me down. I wanna change that

I'd love to ask the question, what are you grateful for?

Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!

I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.

YOUR TURN!

If my doctors aren’t gonna take me seriously I’m going to make them

I went to a cardiologist, and he didn’t take me seriously at all. I got an off vibe from him. I asked the nurses, the receptionist, and my primary care doctor for a tilt table test. My cardiologist said no to getting me a TTT, all because I got better with water and salt intake (almost as if I have POTS???)

After bawling my eyes out m called a different cardiologist and hopefully they’ll actually listen to me. I just want a diagnosis so I can move on. I feel crazy.

My plan is to purposely decrease my salt and water intake so they take me seriously when I finally get a tilt table test. I’m ready to take drastic measures to be taken seriously