this is why i always have headphones in
"it's not polite" well neither is my pain so fuck off
"Stop looking at your phone"
No. I need a constant distraction from the pain I am in. I promise you, you'd rather see me play solitaire on my phone for 45 mins than deal with me while being fully aware of my body. I PROMISE YOU I am listening better if i'm fiddling on my phone than if I'm sitting and being aware of my agony.
Also to everyone who has ever called me an iPad kid, die in a hole.
asking for accomodations shouldn't be this emberassing and shouldn't be a big deal and i shouldn't feel this guilty for needing them
hypothetically in how much pain would i have to be in order for it to be okay to tell people to fuck off? because i am close
people that adapt to your chronic illness,
people that give you a ride and pick you up places without making you feel guilty
people that go to the ER with you
people that make sure to walk slowly so you can keep up while using a mobility aid
people that are willing to try different things to help you
people that are willing to learn and listen to you when speaking about your chronic illness
Chronic illness be like: now our right knee is hurting
Me: ok. Is this a new accessory or should I get it checked out?
Chronic ilness: I don't know sis, sounds like a you problem tbh...
why tf do people think i am joking when i say i am chronically ill and then continue making fun of it as if it's nothing apart from some silly little joke
this is my fucking life, it shouldn't be a joke to you, you shouldn't assume i am lying just cause you can't tell i'm chronically ill just by looking at me when i don't use my mobility aid
having a low symptoms day and then suddenly the chronic pain strikes once again
they CANCELLED the cardiologist appointment i was waiting for for OVER HALF A YEAR!
i was waiting for over an hour just to have someone come up to me to tell me they have to cancel and that i should call in 3 weeks to make a new appointment
the medical system is fucking bullshit and neglectful
would love to make friends with some other chronically ill people!
some stuff about me:
i'm 19 and diagnosed with dysautonomia. i also got some chronic back pain and other stuff i'm trying to get checked out
feel free to message me if you aren't some creep :)
me casually overdoing it on a low symptoms day and then wondering the next day why i feel bad
(will i ever learn? probably not)
pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering, pain and suffering,