Your Future Self Is So Proud Of You!

Seeking advice: new wheelchair user

I will be using a wheelchair semi-regularly the next month to see if it will help reduce pain flare-ups / baseline pain and to figure out if it's helpful for me.

Tomorrow is the first day and I am going to uni and therapy. I have only used a wheelchair a couple of times but I'm comfortable with folding it and such as my dad's disabled and it's his wheelchair I'm borrowing. In theory I know how to maneuver around but I'm nervous about it.

Do any wheelchair-users have tips/advice for new wheelchair-users?

Extra info: it's a foldable wheelchair, brand is Quickie. I'm nervous about tipping backwards (no anti-tip), going up and down curbs, taking the metro, painful hands/arms/shoulders.

For my American mutuals🫶🏼

Dudes healthcare is so fake. My ADHD meds are $940 without insurance. But they gave me a website of "coupons" which straight up looks like a scam website, and I got it today for $60! Just a coupon from a random website and it was $900 cheaper. America, I am confusion!! America explain!!

listen I ended up regretting saying anything about this on my old blog because people will interpret literally any and every statement maliciously on this hellsite but I want to start like. a helpline for people who are like “hey I pretty much only read YA but I’m like 22 now and don’t relate to teenagers as much, it’s such a shame that there are no fun books written for adults :(” because boy HOWDY are there some fun books for adults 

disabled people are worth whatever cost or resources is needed to keep them alive. disabled people are worth it even if they don't live long. they're worth it even if they will need extra support and resources for every day of their life. they're worth it even if they spend all they life indoors. none of it is wasted. none of it is in vain. time, effort, money, resources spent on a life are not wasted. these things have served their purpose. the joy of someone's existence is not undermined by not lasting forever. there's no meaningful point, some threshold where you can say "okay this is enough. after that it's not worth it." it's always worth it.

From friends and family, to doctors, and strangers: disabled people have to face judgement, disbelief and hurtful comments. But guess what? There are so many more disabled people in the world than you realise, in fact many of us try to fake being well, because of the stigma and judgement surrounding disability.

Faking disability and illlness is rare. The 1 in 4 disabled people in the world are not rare. So next time you think about questioning someone's disability - don't. That's all.

Yet another reminder that faking is a conscious choice that you make.

It is not something you can do accidentally, regards of what you're talking about.

You can't accidentally fake depression, or anxiety, or bipolar disorder, or schizophrenia, or any other mental illness.

You can't accidentally fake Borderline Personality Disorder, Histrionic Personality Disorder, personality disorders.

You can't accidentally fake ADHD, autism, Tourette's Syndrome, auditory processing disorder, aphasia or any other neurodivergence

You can't accidentally fake being trans or ace-spec or aro-spec or any other LGBTQIA+ identity.

You can't accidentally fake chronic illnesses like CFS, fibromyalgia or any chronic illness.

You also can't accidentally fake being good/intelligent at something. You didn't fool your peers into reaching your position.

You can't accidentally fake trauma, PTSD/cPTSD, DID/OSDD/DDNOS or any other trauma-based disorder.

Tldr:

Faking is a conscious choice.

You cannot do it by accident.

If you are worried that you are faking, that in itself is proof that you are not.

I feel like this a lot lately, especially bc uni started again and I'm using a wheelchair now. The other day in anatomy class I was constantly apologising and being just my general awkward self. A friend of mine and fellow med student messaged me later to ask if I felt like I was in the way with my wheelchair and to remind me that I belong there just as much as anyone else🥺 so thankful for the few friends I have found in medschool who are genuinely kind and accepting when it comes to my disabilities.

I'm in medschool and I'm the only visibly disabled student in my semester. I'm not very social outside of classes so I can't be certain, but I'm fairly sure I'm the only visibly physically disabled med student in multiple years. I've heard about one other who is atleast 4 years ahead of me. So, in doing the math I can conclude that I'm 1 out of 2 visibly physically disabled med students out of roughly 3500 med students at my university.....

if you feel like you’re ‘getting in the way’ as a mobility aid user, particularly with larger aids like wheelchairs, rollators/walkers, gait trainers and service dogs, That Is A Fault Of The Space (and potentially the people), not of you. You deserve all the space you take up and more.

My chronic pain has gotten worse every winter for the past 4ish years. And not just a flare up that goes away again but permanently worse. And I don't know if it's simply a coincidence that it happens every winter but I'm so nervous and scared because it's getting cold again.

The normal amount of pain is zero. I don't know what to say here. The standard abled person amount of pain without injury or significant exhaustion is so low that it will not register to most of you. It's the slightest twinge. I am so unequipped to explain this to y'all but of you experience regular pain you have chronic pain 😭

about chronic illness and the constant search for blame.

everyone tells you this shit constantly until you start to believe it, and every time it flares up you wonder what you did wrong. on top of the pain, fatigue, and everything else, it starts to feel like a personal failing — like you just aren’t trying hard enough, even if you’re trying as hard as you possibly can just to get through the day.